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Petition Tag - fibromyalgia
1. Change DWP Medicals for Fibromyalgia Syndrome 
Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.
Chronic widespread body pain is the primary symptom of fibromyalgia. Most people with fibromyalgia also experience moderate to extreme fatigue, sleep disturbances, sensitivity to touch, light, and sound, and cognitive difficulties. Many individuals also experience a number of other symptoms and overlapping conditions, such as irritable bowel syndrome, lupus and arthritis.
The pain of fibromyalgia is profound, chronic and widespread. It can migrate to all parts of the body and vary in intensity. FM pain has been described as stabbing and shooting pain and deep muscular aching, throbbing, and twitching. Neurological complaints such as numbness, tingling, and burning are often present and add to the discomfort of the patient. The severity of the pain and stiffness is often worse in the morning. Aggravating factors that affect pain include cold/humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.
In today's world many people complain of fatigue; however, the fatigue of FM is much more than being tired after a particularly busy day or after a sleepless night. The fatigue of FM is an all-encompassing exhaustion that can interfere with occupational, personal, social or educational activities. Symptoms include profound exhaustion and poor stamina.
Many fibromyalgia patients have an associated sleep disorder that prevents them from getting deep, restful, restorative sleep. Medical researchers have documented specific and distinctive abnormalities in the Stage 4 deep sleep of FM patients. During sleep, individuals with FM are constantly interrupted by bursts of awake-like brain activity, limiting the amount of time they spend in deep sleep.
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud's Syndrome, neurological symptoms, and impaired coordination.
2. Illinois to Recognize National Fibromyalgia Day on May 12th
National Fibromyalgia Awareness Day has been declared on May 12th. We want Illinois to recognize this day to raise awareness for this cause.
Fibromyalgia is a silent syndrome that no one can see but the pain is real!
3. Raynaud's Syndrome Awareness
Raynaud's is a chronic illness, which means without medication people's feet and legs often go black with the cold. Many people live in the world live in fuel poverty so their hands and feet are affected by the cold. This means on bad cold days they have trouble coping with every day tasks like walking, reading, writing and using a computer. The easiest way to do their shopping is online as they are often house bound.
The current benefits system means that if you’re under 60 you cannot make a claim as you are too young, and those with children over school age cannot claim because their children are too old.
People with Raynaud's should get the help they are entitled to. Raynauds is also a greatly under funded area by many global Governments.
4. Create Endometriosis Awareness & Understanding
An estimated 176 MILLION women and girls worldwide have endometriosis!
"This makes endometriosis more common than AIDS and more common than cancer", as per Ohio State University Medical Center. (Source: http://bit.ly/PyjDP).
Yet for years it has remained largely "under-the-radar". The general public has been largely unaware of it - or misunderstands just how very debilitating it can be. When endometriosis IS mentioned in the media, misleading statements may be made (causing confusion for patients and the public).
We have a duty to educate the public about this life-altering illness by spreading factual information... and by recognizing misinformation and taking steps to address that.
Endometriosis can only be diagnosed via a surgical procedure called a laparoscopy.
Endometriosis awareness is vital! It is equally vital that information disseminated about endometriosis be accurate! In spreading myths and misinformation, endometriosis patients are hurt rather than helped.
Unfortunately, there is NO CURE for endometriosis.
The purpose of this petition is endometriosis awareness. ANYONE who wishes to sign it may do so. Whether you are male or female, young or old... if you wish to show support for the 176 million women and girls living with endometriosis, we'd be honored if you'd sign this online petition. If you wish to do so, you may include a comment when you sign. Please spread the word about this petition to others!
* Please note that I do not endorse any organizations. Patients are encouraged to do thorough research before supporting any organization claiming to help women and girls who have endometriosis.
Thank you!
Sincerely,
Jeanne
Please see my blog for more information:
Chronic Healing
http://chronichealing.com/
5. Support holistic health care for the disadvantaged
According to the CDC report men in the U.S. are about four times more likely than women to commit suicide. 75-80% of all people who commit suicide in the us are men. Also according to CDC the leading disability rate cause is depression we are losing are: father, men brothers, sons, mothers, wives, daughters, sisters, and children from depression.
Either directly or indirectly, did you know that many diseases are related to depression i.e. heart disease, cancer etc. My Time 2 Heal, Inc. is a nonprofit organization that provide holistic health care services to the economically disadvantaged, encourage self love, eradicate Fibromyalgia & Chronic pain suffering, to fight against depression and disease related to depression.
6. Hear Our Voices: FMS, CFS, CFIDS, CMPS, MCS
For those of us who live with these invisible illnesses (Fibromyalgia Syndrome, Chronic Fatigue Syndrome, Chronic Fatigue and Immune Dysfunction Syndrome, Chronic Myofascial Pain and Multiple Chemical Sensitivity) this Petition is for you.
It is our hope that together we can make a difference in the education of the medical personnel; not only that these illnesses will be required teaching in their schools but also that courses are made available for current physicians and nurses in their Continued Education Requirements.
The medical community needs to know what these illnesses are, to realize they are very real and not just waste basket diagnoses or all in our heads. It's time for us to step up to the plate and demand that our voices be heard.