Petition Tag - arthritis

Ankylosing spondylitis (AS) is a chronic inflammatory condition of the spine which produces pain and stiffness through adult life. It usually begins in the teens or early twenties and affects more men than women. There are around 200,000 people diagnosed with AS in the UK. It is currently incurable and one third of people with AS are unable to work because of their condition.

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Wal-Mart in Carrollton Georgia has increasingly made it difficult for those with disabilities to shop in comfort. They began providing the powered carts for shopping, however, some people are unable to make into or out of the store without such device.

In the beginning they did not argue about the customer going to their vehicle with the device, in fact, they would offer to help (as do many other companies with said devices) Some are unable to utilize the use of a "regular" wheel chair and have no funds / plans to provide their own.

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For many decades the vast majority of the South African population has experienced either a denial or violation of fundamental human rights, including rights to health care services.

To ensure the realisation of the right of access to health care services as guaranteed in the Constitution of the Republic of South Africa (Act No 108 of 1996), the Department of Health is committed to upholding, promoting and protecting this right and therefore proclaimed the PATIENTS' RIGHTS CHARTER as a common standard for achieving the realisation of this right. The charter, inter alia, states that everyone has the right of access to health care services that include palliative care that is affordable and effective in cases of incurable or terminal illness.

In terms of the charter, members of a health insurance or medical aid scheme are entitled to information about that insurance or medical aid scheme and to challenge, where necessary, the decisions of such health insurance or medical aid schemes, relating to members. With this in mind, we The Arthritis Foundation of South Africa petition all medical schemes in South Africa to desist the practice of imposing exorbitant co-payments on Biologic treatment and petition the Council for Medical Schemes to abolish such practice.

Patients who have experienced being without pain whilst on a biologic but who cannot afford co-pays are having to cease the use of their prescribed biologic and face returning to a life of crippling pain and disability.

It is ironic that biologics such as Interferon B for Muscular Sclerosis, at almost the same price as those for Rheumatoid Arthritis, have – rightly, long been accepted and reimbursed by medical schemes, whereas for Rheumatoid Arthritis and other immune mediated inflammatory diseases, there has and still is strong resistance to reimbursement on the part of the medical schemes. This, despite the occurrence of the diseases being fairly similar, and Rheumatoid Arthritis causing even greater handicaps than MS, according to WHO’s ICF data.

The percentage of people suffering from these diseases is approximately 1% and remains virtually the same across all nationalities and race groups. Therefore there is neither need nor justification for medical schemes to claim they cannot provide optimal cover for the immune mediated inflammatory diseases.

It is also our contention that where a medical scheme insists on immune mediated inflammatory disease patients going onto the highest package option before it will cover them should they require a biologic, it has no right to, in addition, demand a co-pay. Patients are being forced into the invidious situation of “pay or deteriorate”.

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The only one of its kind in Scotland, the Highland Rheumatology Unit in Dingwall provides unparalleled inpatient and outpatient care for people suffering from inflammatory acute & chronic joint disease as well as other severe joint and bone conditions. The Unit transforms the lives of people, allows them to remain independent and have less of a need to call on GPs' time and that of other local services.

The following services are all provided under the one roof: Specialist Physiotherapy, Hydrotherapy, Orthotics, Podiatry, Dietician, Dermatology Nurses, Specialist Occupational Therapy, X-Ray, Dexa Scan, Inpatient Treatment & Outpatient Clinics. Biologic/Rheumatology Specialist Nurses, Education, Injection Therapy, Intravenous Infusions and Consultant ward rounds.

This all provides an holistic approach to management of systemic conditions for patients and are provided by remarkable, caring staff. They continue to provide this despite the fact that five nurses who retired have not been replaced.

NHS Highland is now considering making cuts which in one form or another, will drastically reduce such care for thousands of people. Arthritis may be thought of as an illness affecting elderly people but there is a large and increasing number of young people suffering and requiring long term care. It can hit anyone at any time. NHS Highland is suggesting that the concentrated, invaluable care that is provided at the Unit could, perhaps, be provided by GPs and other community health professionals. Their resources are already fully stretched. They do not have the specialist knowledge to ensure that up-to-date treatment is given.

Excellent specialist services are usually provided in large towns and cities but here in the rural Highlands, with our challenging geography, we have a brilliant, unique service that should be cherished. NHS Highland should be praising and expanding the Unit, rather than reducing it. Many people want to fight cuts. In addition to this petition, we have an email address: friends.of.hru@googlemail.com to which you can send support for our campaign.

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Arthritis: Many Victims, Not Enough Funding

It's the disease Americans are most likely to get, but advocates say more money is needed for research

By John Reinan
HealthScoutNews Reporter

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SATURDAY, Jan. 12 (HealthScoutNews) -- As the baby boom generation ages, its members may be thinking about their vulnerability to such illnesses as heart disease, diabetes and cancer.
But the odds are good they haven't given much thought to the disease they're most likely to get: arthritis.

Arthritis currently afflicts 43 million Americans, and that number is projected to rise to 60 million over the next 20 years.

"It is a serious problem that is not taken seriously," says Dr. John Klippel, medical director of the Arthritis Foundation.

"A very high percentage of Americans will get arthritis," he says. "Arthritis is becoming one of the more common medical conditions in this country. We've known for a long time that it is the leading cause of disability.

"But I think the general impression for most people is that arthritis simply means aches and pains. And they think of it as something that only affects old people," Klippel says.

Although it's true that the majority of arthritis sufferers are older adults, some forms of the disease -- such as lupus -- strike younger people most often. And more children have juvenile arthritis than have juvenile diabetes.

Arthritis comes in many forms, but the most common is osteoarthritis. That's the variety that attacks cartilage and bones around joints in the body, and it accounts for about half of all arthritis cases.

In osteoarthritis sufferers, the cartilage in their joints becomes damaged and disappears over time. The bone under the cartilage becomes stiff and hard, and there may be growths (called bone spurs) around the margins of the joint.

Scientists still aren't completely certain what causes osteoarthritis, although they have identified some risk factors.

"We know that injury to the joint is a factor," Klippel says. "People in their teens and 20s who injure a knee playing sports, for example, are at a very high risk of getting osteoarthritis."

Aging is another risk factor. Something happens during the aging process that speeds up the destruction of cartilage.

"It is not just the wearing out of cartilage," Klippel says. "It's not like a tire going bald. For reasons we don't understand, the cartilage becomes damaged."

As with so many chronic diseases, obesity also plays a role.

"People who are overweight are at increased risk for developing osteoarthritis, particularly of the knees," Klippel says. "People in their 20s and 30s and 40s should understand that this is just another reason to pay attention to your weight."

Klippel and others at the foundation are hoping to raise public awareness of arthritis and get more government money for research. Despite the high numbers of Americans with arthritis, the Arthritis Foundation operates with far less money than similar organizations devoted to other diseases.

"The American Cancer Society's budget is about $800 million a year. Ours is about $130 million," says Tino Mantella, chief executive officer of the Arthritis Foundation. "The level of support we get from the government is low relative to other diseases."

Mantella hopes to raise money from the private sector as well, pointing out that arthritis costs the nation $80 billion a year in medical expenses and lost productivity.

"We need to convince business and industry that, with the right resources, over time it's going to cost them a lot less to support research than it will cost them from days missed at work and medical expenses from insurance," he says.

Treatment for arthritis starts with basic over-the-counter pain relievers such as acetaminophen (found in Tylenol) and ibuprofen (found in Motrin and Aleve).

For more severe cases, cortisone injections into the joints can be helpful, and the Food and Drug Administration recently approved an artificial joint fluid for use in the knee.

Recent years have seen a surge in advertisements for the supplements glucosamine and chondroitin. Klippel says glucosamine has proven to be effective in relieving arthritis pain, although he says more study is needed to determine the effectiveness of chondroitin.

And as a last resort, patients can opt for knee or hip replacement surgery.

"These have become very common operations," Klippel says. "And they can really restore a person's life. These surgeries are very effective and quite safe."

But the most important step in dealing with arthritis, Klippel says, is the most basic one.

"It's people taking control -- being responsible for your arthritis and not letting it take over your life," he says. "When one is confronted with arthritis, you do have some choices.

"But you have to determine that you're going to do something about it, and not just have the attitude that going to the doctor is a waste of time and you're just going to have to live with it," he adds.

What to Do: Are you at risk for arthritis? Take this online quiz. And find out more about the use of dietary supplements from the Arthritis Foundation.

Copyright © 2002 ScoutNews, LLC. All rights reserved.
Last updated 1/12/2002

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